Come Walk With Me

When I woke up from the anesthesia after my colonoscopy in 2013, I was told that I had Ulcerative Colitis and that there was no cure. I was told there were treatment options available and we would discuss them next week. 

And that was it. 

I wish that there was not any more IBD diagnosis. Unfortunately, it is becoming more prevalent and pediatric cases are increasing as well. Every year 70,000 people are diagnosed with IBD. Let’s give these people some hope. I recently found out that the office I used to seek treatment for my Ulcerative Colitis will not hand out the new patient packets for their IBD patients. Free resources that they won’t utilize.  This is unacceptable.  

was left to my own devices to search the internet and social media trying to figure out what the hell was happening with my body. I was given very little hope and a whole lot of fear. At the time, there were less than 100 hashtagged #ulcerativecolitis posts on Instagram. Now there are over 127,000. 

I don’t want anyone to ever wake up to those words again and be left to read the worst of the worst on chat forums on Google.  There are so many resources available now, and so many treatment options that remission is possible if you have the right care team and find what works for you. This is why I walk for the Crohns and Colitis Foundation. Come join me on Sunday, October 1st at 1pm at Hawk Island (1601 E Cavanaugh Rd, Lansing, MI 48910) and take a walk with me. 

Sign up here: http://online.ccfa.org/goto/hopesparkers 

Or if you can’t make it, if you would consider donating I would greatly appreciate any contributions to my team fundraiser. 

Thank you for supporting me. I hope to see you there!

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The Gift of Gratitude-My Hope Sparking Status

Gratitude: The quality of being thankful; readiness to show appreciation for and return kindness. (webster.com)

Gratitude isn’t just the simple task of saying “I’m thankful for…”, though that is a good place to start. It’s being appreciative and showing it.

I came across and article in Real Simple magazine (does that show what my 26-year-old life is like? I now read Real Simple magazine, and I love it) called “Why Gratitude is Great.”  To sum it up very briefly, demonstrating gratitude can make you happier, more energetic, healthier, increase resiliency, improve relationships and turn you into a nice person. Wow. Most important to note for my fellow auto immune disease fighters; having an attitude of gratitude can boost your immune system. There are lots of studies and science out there to prove this, and I haven’t found anything to disprove it. So why not devote myself to this gratitude idea? I haven’t been able to find anything negative about treasuring good things in my life.

I consider myself a pretty appreciative person, but I’ll be honest; sometimes when going through the cycles of having an autoimmune disease, it can be pretty hard to find an ounce of gratitude and pretty easy to slope into the “this just sucks” attitude. I want to stop doing that. I’m not trying to take away from the fact that having an autoimmune disease is awful. It certainly is. But I think one of the great things about this diagnosis is the appreciation and elation you gain from the good days. If I have a day full of energy and I can smile and laugh without pain, am not dizzy or physically exhausted, or on some emotional tyrant that involves sobbing and then throwing shoes, I AM PUMPED. And like many others, I tend to try to do everything I possibly can when I’m feeling fantastic because I’m just so happy to be feeling good. I want to have that attitude more often.

So, starting today, the end of IBD Awareness week, I’m making myself accountable for having this attitude. It doesn’t mean that you won’t catch me saying I don’t feel good. It doesn’t mean my IBD will suddenly disappear. And it doesn’t mean I’m going to able to stop cancelling plans because I’m too tired to leave the house. But it means that when I’m having a bad day, I’m still trying to find something that gives me that elated feeling. A spark of hope, if you will.

I’m calling it my Hope Sparking Status. Every day, I’m going to be practicing being truly thankful, and showing it. I might not be able to post everyday, but I’ll at least be posting once a week with a sum of how I’ve returned kindness into the world for the days prior, or what I’ve done to show gratitude. I’ll be using the blog and other social networks to keep myself accountable (follow me on twitter @flareuphope or instagram @hopefulme2633) so you can follow me there to see how my status evolves. If you have a Hope Sparking Status you want to share, please do! I’ll feature it on the blog.

I think that what you put out into the world can cause a ripple effect. If I can practice being a source of light for others, my own light may grow brighter.  If I can give purpose to having this disease, it makes it more acceptable. And maybe, just maybe, I can make someone else feel better, so they can make someone else feel better, and we can light up the world for those who are surrounded by darkness. It just takes a spark to see in the dark.

So, to launch my attitude of gratitude venture, I’m having a giveaway! It’s just a small package of some of my favorite things to relax with when I need a new perspective. The package includes:

1 box of Bedtime Yogi Tea

12 tealight candles (eucalyptus and spearmint scented)

A microfiber HOPE pillowcase

A tea or coffee or whatever you want mug

A stained glass candle holder

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Want to enter!?! All you have to do is tag someone you want to show appreciation for in the comments below, or on twitter or instagram with the hashtag #flareuphope.

Contest ends on Tuesday December 9th at 8pm ET, so get your entry in now!

Can’t wait to share my gratitude journey with you. Thank you for your support!