Was starting your advocacy journey a hard decision? Were you anxious and hesitant or were you excited and ready to share your story? Tell us how you chose to start advocating your condition.
I started this blog as an outlet for dealing with my condition after initial diagnosis. I was struggling with trying to find what works me for me and coming out here to find support and to share my frustrations. As my journey evolved, I started sharing more resources and sharing stories of people who inspired me. It helped me stay hopeful to connect with others who were going through similar battles, and I hoped it would help others too. I began sharing Hope Warrior stories and focusing more on the mental health aspect of how having a chronic illness changes you.
I do not claim to be an expert in IBD. I don’t provide medical or treatment advice. I just share my story and share what helps me, and hope it helps others too. It was hard at first and I was worried about people in my real life finding me out here and judging me, but after a while I stopped thinking about that. This is my life now. The more awareness I can raise about what dealing with an incurable disease is like in real life, the better. And, honestly, I’m proud to share my story, particularly when I know there’s a purpose for doing so.