I’m getting married in June.
At my recent doctors appointment, my PCP asked , “So, you’re working full time, planning a wedding yourself, trying to stay healthy, workout and stay in remission all at the same time? Aside from every other life task, am I missing anything?”
No, Dr. Miller. You’ve got it.
It’s overwhelming sometimes managing your own care and trying to have a life at the same time. I’m constantly checking in with my body and asking myself a million questions about my physical and mental state. It’s like one of those questionnaires at the doctor :
Any bleeding today?
How many glasses of water did you drink?
How many hours of sleep did you get last night?
And then, add the wedding planning on top of that…
When are we meeting with the officiant?
Are we having a brunch?
Where will we buy our wedding bands?
How can I pay for this and pay my medical bills too?
And add on top of that all of the other stresses that come with planning a wedding (future in laws, bridal party organizing, pressure from outside sources to fit a certain mold etc etc etc) I could go on and on but I think you get the point.
Over the next few weeks I’m sharing what I’ve been doing to manage my autoimmune disease and get this wedding how my fiancé and I want it to be, simple, beautiful, and about us. (Duh). If you aren’t planning a wedding but just living your life with with a chronic illness these tips may still be able to help. They are tidbits of what I’ve found to help me along the way.
1. Do what you can, when you can. It will be enough.
I don’t know how many times I’ve repeated this little mantra to myself over the past few months. I know a lot of people with chronic conditions fight a feeling of guilt when they aren’t able to accomplish all of the things “normal” people seem to be able to do.
Folks, none of us have super powers. Even so-called normal people.
Sometimes you decide you don’t give a flying pigeon about having real flowers and fake flowers are just fine. Or you decide you don’t want a brunch the day after the wedding to your MIL’S dismay because it is just too much work and too exhausting to even think about. It’s okay.
Some days you’re crossing items off your to do list (one of many) like it’s your job. And some days the most work you get done is venting to your bridesmaids. Sometimes its looking at your bank account and saying, I can’t do anything this week.
All of this is okay.
It is okay.
Do what you can.
A lot of the time all I can do is take old romance novels and cut the pages into squares and fold them into flowers. It costs me nothing, I think they’re pretty, and it goes with our wedding theme. You might have to get creative on what you can do some days. Some ideas on what you can do when you feel like you can’t do anything:
*Breathe. Seriously. Focus on inhaling and exhaling. It works.
*Pet your dog (or cat) or stuffed animal or heck even a rock if that’s your thing.
*Write in your journal.
*Listen to music.
*Call/text a friend
Etc. Etc. Etc.
Whatever it is, know that it is enough.
There’s a lot of pressure sometimes from what other people think you should be doing. I’ll touch more on this later on, but for now, just know, whether you’re planning a wedding or just trying to get through the day while your body is raging war against itself, whatever you are doing is enough. Really, it is.
6 thoughts on “Hope in Paper Flowers”
Great post! Whatever we are doing is enough is a great reminder! Also, I love the paper flowers!
Thank you!! I’ve been working hard on them lol. Thanks for reading also. Hope you are well.
This is a great reminder that there is no need to feel the guilt. I struggle with that. It’s so important to just cope sometimes in order to have a better day tomorrow.
Hi Erika! Thanks for your comment. Guilt is something I struggle with a lot too. I like your train of thought, cope today for a better tomorrow. Eases the guilt monster thinking about it that way. Thanks for sharing and reading!
Beautiful post and so relatable!
You are far smarter managing your spoonieness at a far younger age than I was.
Keep on saying “no,” when you cannot.
Keep on being you, and only you – real flowers just die anyway; and next day brunches are exhausting and expensive. (We did/had both, and 11 years later, the only ones who remember the REAL flowers were my beloved mom, Hubs, and the parents of the kids who used my special, extra-long stemmed cala lillies for “sword fights” during dinner – nope, they didn’t scold or stop them – they FILMED THEM thinking it was “cute,” and the “wedding was over anyway.”)
Doing nothing some days with your doggie is the very best healing.
You get one shot. Enjoy it all; for you, for your new Hubs, for love, for your health.
Thank you so much, Erin! That’s hilarious about the cala lily sword fights. Glad it made for some good memories anyway . That’s what it’s all about!